Today’s blog post is from J. Clyde Wills. He recently visited our exhibit, “Reflections of Reproductive Loss & Access to Care,” at University of Wisconsin, Oshkosh and contacted us afterward to share some of his story with us.
While infertility affects men and women equally, we don’t as often hear the perspectives of men dealing with an infertility diagnosis. Our mission is to share stories, especially under-represented stories, through the creative expression of art and writing, making infertility visible. That’s why we invited J. Clyde to share his story with you today. It’s also why we feel it’s important to incorporate specific programming around men’s stories, and the ways that infertility impacts men’s health, during Men’s Health Month each June.
This year, we’re again partnering wiith Dr. Paul Turek of The Turek Clinics to present an art exhibit and programming in Los Angeles from June 9 – 30. We hope you’ll check out our event landing page for initial information on “Reimagining Reproduction: The ART of Infertility in Los Angeles” and submit your artwork for consideration via our call for art.
We will have a special focus on highlighting the artwork and stories of men, as well as single parents by choice, those in the LGBTQ+ community, and other under-represented individuals and groups who are dealing with infertility or must use assisted reproductive technologies to help them build their families.
These perspectives are so valuable. Thanks, J. Clyde Wills, for sharing yours with us today!
Pain, Regret, and Blood: A Journey in Infertility
By J. Clyde Wills
I can’t talk about it without crying: IUI, IVF and five failed adoptions. We were trying egg donation before our marriage fell apart. I suppose I am still crying.
Kate* and I started the old fashioned way, which is what all newly married couples do whether they want babies or not. But we did. No one told me making babies would be so hard. In fact, high school health class taught me the opposite. When I was younger I never considered not using protection because even a romantic gesture could cause pregnancy.
Our first stop in fertility was at the Yale Fertility Center. We were told was one of the best fertility centers in the country. The first round of IUI, intrauterine insemination, yielded no results, so we tried IVF for the next round. Insurance only covered the first one so this round of in vitro fertilization was on us. During the whole process my role felt so secondary. It was my job to go into a little room at the doctor’s office containing the most regressive pornography I had ever seen, make my contribution into a sterilized container, and then get out of the way. After that it was my job to administer the shots.
I felt so helpless. I wanted to do more but there was nothing else I could do but give support and love. So I did that. Truthfully Kate was strong enough to give herself the shots.
Our hopes soared as Kate’s blood tests came back positive. The news that we were pregnant was intoxicating which made Kate’s daily regimen of shots easier to bear. Everyday I administered injections into her tummy but the discomfort became worth it. We were having a baby.
Our hopes changed the day Kate received her first ultrasound. The doctor passed the wand over her uterus but there was nothing. It was not just that there was no heartbeat but nothing at all. Hormones levels clearly read pregnancy but her uterus was empty. The pregnancy was ectopic and needed to be ended. After months of injections Kate now had to be treated with methotrexate, a drug normally used in chemotherapy, to end the pregnancy we had dreamed of.
We took a long break after that. Ending the pregnancy was too devastating. So we decided to try adoption. I wish someone had told the cruel reality of domestic adoption. I don’t know what I was expecting but I wasn’t expecting this. We chose Lutheran Social Ministries as our agency. I was making a career as a Lutheran minister so it made sense to us. The first two adoptions failed quickly. Our agency connected us to birth mothers and after the emotional journey of meeting them and filling out forms the birth mothers chose another couple. That is how the system works. Potential adoptive parents must woo and court birth mothers who have the option to accept or reject and can always later change their minds.
Then we got the call. A woman was giving birth on the other side of the state. She was choosing an adoption plan for her baby so I left work and we drove to the hospital stopping at Baby’s R’ Us along the way to fill the car with everything we needed. After a long day we came home with Jacob whom we named after my father. For five days it was the kind of bliss that comes with being a new parent. We lived in 24-hour shifts as we fed him, changed him and loved him. This is where I start crying.
After the fifth day we got the call. Jacob’s birth mother had changed her mind and a social worker would be coming to our house to take him away. That is also how the system works. Until she signs the surrender documents a birth mother has 90 days to have a change of heart. We would later learn that birth mom had used the adoption process to manipulate her own parents into keeping the baby. Giving Jacob away on that day may have been the worst day of my life. It felt no less like a piece of me had been amputated.
After Jacob, Kate and I took matters into our own hands, abandoned Lutheran Social Ministries and pursued private adoption. There is a whole cottage industry of adoption attorneys and we found one in Jacksonville, FL. It is more expensive but the success rate is higher. This is when we met Andrea.
Andrea already had five successful pregnancies. Her first child was adopted by her brother and her other four babies were adopted by couples like us. This was number six. Andrea denied that she was selling her babies to fund her addiction to crack cocaine. But we didn’t care. We just wanted a child. After months of regular visits to Florida and writing lots of checks Andrea disappeared. She went off the radar for a long time with no one, including her family and the attorney, having any idea where she was.
Andrea re-emerged when it was time to give birth and informed us she was keeping the baby. It was her right. Kate and I had no claim to the child, even after it was admitted that Andrea never had any intention of giving up her child and only wanted someone to pay her bills while she was pregnant. The sad part is Andrea did not get to keep her daughter either. Because of her continued abuse of drugs Andrea’s little girl was placed with a family member. Kate and I were never considered.
One more failed adoption after that and Kate and I quit the adoption game for good. We decided to try egg donation. The process is much the same as IUI and IVF with it’s many visits to doctors and shots in the tummy with hormones. The only difference is the egg is donated through any one of a variety of organizations. We scrolled through profiles like it was an online dating site until we found a match that made sense with a price we could handle. A suitable donor was selected but before the process could start our marriage disintegrated.
The end of our marriage is its own tragedy. It could be best equated to a scene from the 1973 film the Long Goodbye where, in order to intimidate his enemies, a gangster smashes a Coke bottle across his own lover’s face right after saying to her, “You are the single most important person in my life.” In truth there was never any violence in our marriage but the end was no less painful. I died that day.
I look at The ART of Infertility exhibit and see my life unfolding before me. I see the many sculptures built from fertility medications and remember every puncture into Kate’s smooth, soft skin. The crib containing $12,000 of medications is specifically heartbreaking. I recognize all of them because it was the contents of our pantry for years. It also reminded me of the crib and stroller that collected dust in a room that was never used. I still have a red biohazard container holding an entire regimen of soiled needles. I should have gotten rid of it years ago but haven’t done it. It is a visceral reminder represented in pain, regret and blood. I can’t let it go.
There is no trace of kumbaya in this story. Not everyone gets a happy ending. Not everyone gets a child or a family, regardless of effort or money spent. Not all dreams come true.
But I won’t allow my story to end this way. It’s not fair to me or to you. I find healing seeing this story expressed through art. Their story is my story and it comforts me. It also reminds me that in grief it is healthy to give my soul a voice and the permission for it to cry and sing. As loss is released, my burdens grow wings and fly away leaving me on earth clutching tightly onto the last of joy. If I am allowed one last prayer it is to see that joy blossom into redemption.
*Names have been changed to protect privacy.