Reflections on UURAF

by Juliette Givhan, The ART of Infertility’s Undergraduate Research Intern

This past Friday, the 13th of April, I was able to participate in Michigan State University’s 18th annual University Undergraduate Research and Arts Forum. The forum, which was held at the student Union on State’s campus, was an opportunity for students to summarize the research they had conducted throughout the year and present it in front of a public audience in the format of a poster.

As I arrived at the Union to present a synopsis of the work I have done with The ART of Infertility Project I was prepared to be disappointed. UURAF, while an opportunity to present research, is also a competition… one that I was sure would be dominated by STEM majors who would expertly present posters chock full of graphs, data charts, and ground-breaking findings. I felt that my poster, which displayed art from the project and the reality of a human story that cannot be quantified in the same way that other research can, would be out of place. I didn’t know, as I was clipping my poster to the stock board I had been provided, that I would leave the room after an hour and a half of presenting my findings feeling a huge sense of accomplishment.

I left UURAF wishing I could have stayed longer. The forum provided a space where I could accomplish one of my main goals of working with this project: to spread word of the reality of infertility and to display that art can be used as a means of conveying complex emotions. The poster I presented was broken into five sections: a break down of The ART of Infertility Project and what my role within the project has been, a description of the workshop— Reproductive Writes— held on State’s campus, my own artistic response to the topic of infertility, and a small section for facts about infertility. The last and largest section of the poster was taken up by interviews I had conducted with Annie Kuo and Madge Harris-Rowland, two women of color whose stories built a commentary on representation within the world of infertility. My favorite part of participating in UURAF was being able to spread the narrative of these two women whose varied experiences presented a reality outside of the often-assumed norm of infertility solely affecting white women.

I also really enjoyed interacting with interested passerby as well as the judges who would determine the winner within my category (Humanities and Performing Arts.) Everyone that I spoke to was interested in the project and asked questions. Their eyes widened in alarm when presented with the financial reality of trying to treat infertility, of looking into adoption or egg freezing. I was sharing knowledge with people that they didn’t previously have, and that was really rewarding. I even gave my email to a woman who wanted to know if the project was still taking submissions.

Overall, I really appreciated being able to share the work not only I— but Elizabeth, Maria and Robin—had done on the project. Presenting at UURAF put my research into perspective, it let me see a reflection of the work I had done this semester—work that I am proud of and that I hope will impact those who were able to witness it and spread awareness of the reality of infertility.

We were all excited to learn that Juliette’s poster won first place in her division, Humanities and the Performing Arts. Congratulations, Juliette!

How ART of IF Intern Kristen Mahan will #FlipTheScript this Men’s Health Month

As most of you already know, we The ART of Infertility will be in Los Angeles during the month of June for Men’s Health Month. We are thrilled to be collaborating with Dr. Paul Turek of The Turek Clinics and to have Men’s Health Network as a Media Sponsor. Throughout the next few weeks, we will have a series of announcements sharing specific programming we will be hosting in conjunction with the exhibit. Here is our first “mini announcement”: we got a grant!

Maria, left, with Kristen at University of Wisconsin Oshkosh

Throughout this year, The ART of Infertility has been working with Kristen, our undergraduate intern who is majoring in marketing at the University of Wisconsin Oshkosh. Kristen worked with Maria to design a research project that studies how social media campaigns can be better targeted at men with experiences of infertility. This work represents a new direction The ART of IF is embracing — mentoring young students about infertility and engaging in small research projects to provide an educational experience that responds to real, world issues in the fertility world.

We will have a lot to learn in this process but are excited and hope that we can #FlipTheScript to learn how to better include men in conversations of reproductive loss. Read more about the research project and Kristen’s take on it.

What is this grant?

With the help of Maria Novotny, I have been awarded the 2018/2019 Undergraduate Student/Faculty Collaborative Research Program grant. The research grant through the University of Wisconsin Oshkosh will allow me to travel to Los Angeles with the project and learn about the challenges men face when experiencing infertility. As a young college student, I really do not know much about this experience. But working with the project for a few months, I have become more acutely aware that even if I’m not infertile — a friend or family member in the future most likely will share in this experience.

What is my research project?

Because The ART of Infertility tries to support marginalized populations experiencing infertility and that the Los Angeles event is held in conjunction with Men’s Health Month, my research project is focused on men.  Meaning, I am researching what educational resources men are in need of when experiencing infertility. We know one issue is a lack of male-focused infertility support. So, my research as a digital marketing student is interested in using social media as a way to foster a sense of support and community for infertile men. I plan to create a social media campaign, run that campaign after the opening of the LA exhibit, and then test the effectiveness of that campaign through a targeted survey. This means, that I need participants! So guys, this means I need you!

Why focus on social media?

A 2010 study found that media campaigns can greatly produce positive changes and prevent negative changes in health-related behaviors. I hope that my social media design and survey results will illuminate a series of findings and recommendations that describe methods of how to improve health-related resources for infertile men. Thus, reducing the isolating, stressful, emasculating, and stigmatized experience of male infertility.

What I’m looking forward to:

As a newer member to The ART of IF team, I am extremely grateful for the opportunity this grant from UW Oshkosh is allowing me to experience. Finally being able to see one of the exhibits that Maria and Liz put so much time and energy into will help me grow as a communications intern for ART of IF as well as a marketing/digital major in general. Throughout the first few months of interning with ART of IF, I have mostly seen women share their experiences with infertility. Having the chance to shift gears towards what males experience as well will be beneficial for my learning of the topic of infertility.

 

Mingling (Infertility) Experience Research and Friendship

While curating Cradling Creativity in Philadelphia, we had the pleasure to virtually connect with Bethany Johnson, MPhil, MA and Margaret M. Quinlan, PhD, two professors at UNC Charlotte. They graciously shared with us their research on infertility and communication. What struck us even moreso was how they were personally touched by infertility – through friendship. We want to share their story as it sheds light on both the impact of infertility on scholarship and teaching but also on the importance of friendship and support.  — The ART of Infertility

By Bethany Johnson, MPhil, MA  and  Margaret M. Quinlan, PhD

Our research journey began in a hotel room on a research trip when I (Bethany) learned an IVF cycle might have failed (they were ultimately able to freeze two embryos). I was in my third year of failed treatments then. It was a horrible morning—they called while I was in the shower at 7:38 a.m. I remember the exact time because the embryologist left a message saying “I really don’t like to leave messages on people’s voicemail,” yet I was not informed when I could expect a call, and the office wouldn’t open until 9 a.m., so there was no one for me to call back. I felt powerless, devastated and angry.

Meanwhile, Maggie was so upset for me—she asked if I wanted to just go home instead of completing our research trip, but I was desperate for something else to concentrate on. Later she told me she spent the day pulling her sweater over her expanding belly, and avoiding eye contact just in case anyone asked her about her pregnancy. She also told me later she never could have stayed and worked—she would have gotten in her car to go home and grieve. I felt so out of control that the only thing that anchored me was focusing on something else. I was so thankful she was there with me and didn’t push for us to go home.

It wasn’t the first time she was there for me in my treatment journey. Previously, she brought me a beautiful baby blanket as a gift when we got a dog—a gift I never thought I’d have a reason to receive. Then when I needed an outpatient surgery and my husband was forced to be out of town, she picked me up and drove me to the clinic, waited through the procedure, drove me to a hotel and tucked me in with meds and treats afterward, since my house wasn’t habitable that day. (It was a rough season.) But the greatest gift she gave me was during that research trip. She listened while I cried and grieved, dove into the archive with me, dreamed up research conclusions, walked miles around Brooklyn while pregnant, and then, on the drive home, opened up our research future.

The magic words were these: “Well why don’t we do a study about this?”

That was four years ago. Since then, we’ve conducted three studies, published four articles, made a documentary with graduate students and worked with our participants, a graphic designer (Bo Rumley) and an artist (Alma R. Evans of Ursa Wild Design) to create treatment support cards for people in treatment. Maggie and Alma both told me they wished they had cards to give to their friends (like me), and I wished I had them to give to others. But many of our interviewees said the same thing during our first study, and that’s how we ended up reaching out to The ART of Infertility to share what emerged from our research.

Photo credit: Lynn Roberson, UNC Charlotte, Communications Director, College of Liberal Arts and Sciences

These cards eventually appeared in The ART of Infertility exhibit, along with the work of other talented artists and activists. At the opening, the cards were placed in an open mailbox, challenging viewers to imagine receiving or sending these unique messages to friends and family walking the lonely road of waiting for conception, sometimes receiving a diagnosis, and even beginning treatment or treatments. Being a part of this exhibit felt, in some ways, like the culmination of our efforts to make a difference because of my experience and the experience of so many others in our community.

 

Alma’s card in mailbox, The ART of Infertility. Photo credit: Maria Novotny

Through it all, I could count on the steadfastness of Maggie’s friendship, as well as the support of people we met throughout our work, and kept up relationships with after our studies concluded (when it was appropriate to speak with them again of course). For us, friendship and research always did and always will, overlap, even as medical statuses and experiences continue to shift and change.

Our Research on Infertility

Graduate students in “COMM 6011: Visual Ethnography” course. Photocredit: Lynn Roberson, UNC Charlotte, Communications Director, College of Liberal Arts and Sciences 

The graduate students really dove into the experience and wrestled with their own ability to be allies and supporters of people diagnosed with infertility or undergoing infertility treatments. As Maddy Michalik recalled, “This was my first experience with producing a documentary, and I learned so much about artful research methodologies as well as how to better communicate with individuals walking the (in)fertility path. Initially, I was struck by the varying degree to which patients shared their journey with others — some were very open and regularly updated friends and family on social media while others only told those that needed to know. This taught me that as with any health experience, individuals will cope and seek support in different ways, and as allies, we need to be mindful of how we communicate and offer support without being invasive or insensitive.”

Nathan Pope relayed, “Our hope is that the use of an artistic medium allowed for a more immersive, emotional experience for the viewer. Seeing an individual express their feelings and hearing their spoken word may create a more reflective space for the viewer, just as interviews created a reflective space for participants and the entire project created a contemplative moment for researchers.” Witnessing students learn the process of conducting research and wrestle with these issues as they raised awareness about meaningful support has been one of the most incredible results from our projects.

Part of the documentary features infertility greeting cards that are on display in The ART of Infertility exhibits, The graduate student-produced documentary, 1 in 8: Communicating (In)fertility will also be included in the traveling art exhibit. The first draft of 1 in 8: Communicating (In)fertility https://youtu.be/7z9jfZjoS04. The film was produced by: UNC Charlotte Communication Studies Masters Students/Producers including:  Desiree Bataba, Shanice Cameron, Cameron Davis, Samantha Maine, Elizabeth Medlin, Maddy Michalik, Nathan Pope, Miranda Rouse, and Olivia Sadler, and UNC Charlotte Senior Researchers: Margaret M. Quinlan & Bethany Johnson. The impact of our draft film continues to reverberate throughout the local community and beyond.

A goal of our (Maggie, Bethany and UNC Charlotte graduate students) arts-based infertility research is to prompt future research which deepens our understanding of (in)fertility diagnosis, treatment, and support for patients. We are grateful to be included in The ART of Infertility exhibits and look forward to future collaboration.

More On Our Research on Infertility

Johnson, B., Quinlan, M. M., & Myers, J. (2017). Commerce, industry, and security: Biomedicalization theory and the use of metaphor to describe practitioner-patient communication within Fertility, Inc. Women’s Reproductive Health, 4, 89-105.

Johnson, B., Quinlan, M. M., & Evans, A. (2017).  Research based Infertility greeting cards in traveling art exhibit. The ART of Infertility- Infertility Art Exhibit, Art Therapy. http://www.artofinfertility.org/

Johnson, B., & Quinlan, M. M. (2017, Nov). Race, racism and infertility. Racism in Science [series]. Vital: On the Human Side of Health [Sponsored by the National Endowment for the Humanities]. Retrieved from https://the-vital.com/2017/11/10/racism-infertility/           

Johnson, B., & Quinlan, M. M. (2017, Nov). Infertility: Resources for family, friends, and practitioners. Racism in Science [series]. Vital: On the Human Side of Health [Sponsored by the National Endowment for the Humanities] Retrieved from https://the-vital.com/infertility-resources/

Johnson, B., & Quinlan, M. M. (2017). Insiders and outsiders and insider(s) again in the (in)fertility world. Health Communication32, 381-385.

Johnson, B., Quinlan, M. M., & Marsh, J. S. (2017). Telenursing and nurse-patient communication within Fertility, Inc. Journal of Holistic Nursing.

Johnson, B., & Quinlan, M. M. (2016). For her own good: The expert-woman dynamic and the body politics of REI treatment. Women & Language39, 127-131.

The ART of Infertility as a Research Project

by Maria Novotny

As Elizabeth mentioned in last week’s blog post, we have been a bit quiet this summer. And as you may have learned from reading her post, while we were quiet, we certainly were busy both personally and professionally.

This summer I spent the majority of my time working on my dissertation titled, The ART of Infertility: Conceiving a Participatory Health Intervention Community. As some of you may know, I am fourth year PhD student in Rhetoric & Writing at Michigan State University. My research then looks at how women navigate an infertility diagnosis and use art as method of personal reflection and activism (read more at my website).

This coming May I will graduate and hopefully take a job as an assistant professor of writing and rhetoric at a university somewhere in the United States. My responsibilities in this role would include teaching writing courses ranging from health and medical writing to rhetorical research methods and multimodal composition. But – to first receive a job offer – I need to have a completed dissertation. Hence, a summer of writing all about infertility.

Waking each morning knowing that I would once again be thinking and theorizing about infertility allowed me to really take time to process my own journey. I actually went back to graduate school when my husband and I were first having trouble getting pregnant. As an English major in college, I had always wanted to go and receive my master’s degree so that I could teach at the collegiate level. With no pregnancy on the horizon, and having just moved to a new state for Kevin’s job, I applied and was accepted into Michigan State’s Critical Studies in Literacy and Pedagogy Master’s program.

In this program, I spent two years taking graduate level composition and education courses as well as teaching sections first-year writing. All the while, I quietly continued to try and get pregnant naturally. Graduate school was simply another distraction, until I enrolled in a course titled “Queer Rhetorics.”

Reading Hennessy’s article made me think how much infertility is tied to the production of materiality – literally being capable of producing a child. What happens though when our bodies can’t make a baby?

This course shifted my entire professional identity. As I read books and articles for this class, I started to see my own struggle with feeling often – abnormal. Especially in the case of sex. Few, if anyone I knew, could understand how messed up my sex life was because of infertility. But in reading queer theory, I could begin to find traces of myself in the other stories shared with me.

I began to eventually write reflections on the connections I was making to infertility and began to feel energized in sharing my own struggles and finding a space for infertility in my studies. In fact, part of my final project of this course resulted in several pieces of creative writing. For example, “The House” is a short vignette that is part of The ART of Infertility’s exhibit. My engagement in this course led me to apply for a PhD in Rhetoric & Writing – and long story short — ended up once again at MSU.

For the past fours years now, I have been writing, researching and presenting on what I call “rhetorics of infertility” which examines the meaning-making process of navigating an infertility diagnosis. Partnering with The ART of Infertility allowed me to explore this topic further by looking at how multimodal composition, such as creating art, opens spaces for personal validation as well surfaces a desire to use art as a method of activism.

Facilitating a micro workshop in Houston with the Coalition of Feminist Scholars in the History of Rhetoric and Composition

Facilitating a micro workshop in Houston with the Coalition of Feminist Scholars in the History of Rhetoric and Composition

As I begin my last year in graduate school, I still am not pregnant nor am I in treatment. But I am part of a wonderful organization – The ART of Infertility. And look forward to continuing this research as a co-director with Elizabeth. Through this partnership, we look forward to building a digital archive to provide greater access to narratives and artwork we have collected for the infertility community as a resource for support groups.

As a project that uses art exhibitions as a method to translate embodied, and often invisible or unrecognized challenges of an infertility diagnosis, we hope to continue bringing the exhibit to a variety of audiences. This summer, we were fortunate enough to travel to The Turek Clinic and share this work with physicians, fertility specialists and therapists. And this fall, we are thrilled to announce that we will be traveling internationally to present the exhibition for Merck’s Patient Day in Switzerland on November 9th. The purpose of Patient Day is to help educate staff members about the experience of infertility, and the other diseases and conditions, treated by the pharmaceuticals made by Merck.

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We’ll be flying into Geneva and look forward to collecting infertility stories in the surrounding areas while in Europe.

We haven’t finalized our exact travel dates yet, but for those who follow us in Europe, we will be on your continent for the second week in November, give or take.  Please contact us at info@artofinfertilty.org if you would like to be interviewed for the project.

And thank you to all who have supported this project throughout its journey. Elizabeth and I are truly amazed at your continued enthusiasm for this organization.